SLEEP STUDY....They had ordered this to be done when we got tubes and his oxygen was statting around the mid to upper 80s. It should be 98-100. Plus they suspected that him not sleeping at night may require meds as that is common for children like him. I was very against that and he has pulled through and shown us he can sleep at night and get himself back to sleep if he wakes. His sleeping had improved for several weeks but now he is waking a couple times a night again but nothing crazy like he was doing. So they got him all wired up which took like an hour and a half and he screamed the whole time. Finally by 930 he was done and we got our little vinyl chair/beds situated. Of course he flipped around and his nose pieces kept coming out so they kept coming in. They also kept it freezing in there b/c they can't sweat during the study. Wierd.
The results showed he had over 50 spells of apnea in the night and a majority of them were due to obstruction. Soooo we are going to get rid of his tonsils and adenoids. Not excited!!!! They assured me this wasn't just the new trend and that he really needed it done. THEN THEY DO THE STUDY AGAIN!!! OMG I think this time we will let CAJ and Papa Ricky take him! j/k!
Prayers that improves it enough b/c if not we will be looking at Cpap or oxygen at night. We aren't going to even think about that right now.
Now for the good news....the SWALLOW STUDY!
They strapped him in a feeding seat and proceeded to give him food with barium in it and an xray machine beside him. Pretty fun to watch! Dr was very pleased and said he showed no signs of aspirating. He was swallowing everything beautifully!!! WOOOWHOOO!
They have ordered us to start outpatient OT to work on him eating. It is not uncommon for kids with visual impairment to be behind on eating solids. Makes total sense and that is what we thought and we were excited they agreed with us! I mean that is pretty brave to open your mouth when you have no clue what is going in. So for now we will just keep eating lots of softer foods and encouraging him to work on eating bigger pieces of food. Lucky for him he has our permission to play with his food all he wants. This is how he will learn what it is and that it's yummy and will fill-up his tum tum!!!!
Who knows who came up this study, pretty crazy looking!!!!
